Life as we know it (The updates)

Over the past couple of months since Luke has been home, our lives have been crazy to say the least.  A lot of changes have taken place, but I think we are finally getting settled into our “new” routine.

Luke had lots of doctors appointments when he came home.  Most of them were follow ups from the NICU.  We’ve been to his pediatrician about every other week for weight checks to make sure he is growing as he should. We also saw ENT, but that’s its own post. 🙂

We followed up with cardiology regarding the ASD that they saw on an echo previously.  Cardiology cleared him for now and told us we don’t need to follow up for two years, unless an issue arises that we would be worried about something cardiac.

Urology and nephrology are going to be an on going thing, but luckily, we don’t have to follow up as often as we thought we were going too.  We won’t see nephrology again until September when they will check his kidney function levels and make sure they are still working great.  We will see urology again when he is close to being one.  We will then repeat the same tests that he has already had (A VCUG and a renal scan).  They will then compare and decide on a plan of action and go from there.

We then have early intervention who sends an occupational therapist out twice a month to work with Luke and help him to hit his milestones.

Because of all the crazy, and the possibility of Luke needing a few surgeries, him randomly getting sick and needing a bunch of testing done due to UTI’s because of his kidneys, we decided it would be best for me to stay home with him.  So, when the school year finished, I said goodbye to my dear friends at Canyon Crest and parted ways with Provo school district. I have since been hired to a transcription job at home, with flexible part time hours.  This will help us reach our goals a little sooner, and still give me the opportunity to be home with Luke and make it to all of his appointments.

The company Alex was working for is closing their Utah campus.  He was laid off from his job on May first.  He then took a job working for Ebay.  While he was looking for jobs, he applied to be a 911 dispatcher with Utah Valley dispatch, and has since been hired to that job.  The dispatch job works out a lot better for our family, so he will be done with Ebay this week, and start that new job this coming Monday.

Life is crazy, but we wouldn’t have it any other way.  Hopefully it will settle down a little bit and we can enjoy a little bit of our summer!

 

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